Things went well yesterday. I didn't bleed much, and I didn't get sick from the anesthesia. I'm sore but feeling good.
The doctor thinks I have cyclic neutropenia. Treatment for this is injections...probably daily to start with. The medicine is extremely expensive. There is a research foundation that pays for the medicine for the rest of your life if you qualify. In order to qualify I have to prove I have this disorder through the bone marrow biopsy and for the next six weeks I have to have to have my blood drawn every Monday, Wednesday and Friday to track the neutrophil count. Also they check for chromosomal abnormalities in the bone marrow which are indicative of pre-leukemia. If I qualify, I will have to have a bone marrow biopsy yearly. This isn't a common disorder. I guess the chances are .5-1 persons per million! This why this foundation is willing to give the medication for free in exchange for the bone marrow and tracking of patients through their lives. Hopefully, the doctor has it right. It would be nice to finally have an answer. I go back in the 19th to discuss the biopsy results.
Thank you to all that have been keeping me in their thoughts the last few days.